I haven’t posted much about Caleb lately. I never did follow up with information about the Therasuit therapy that he went through in San Antonio. Honestly, it was a bit of a disappointment. Caleb did not want to cooperate, and while everyone has those moments, his moment went on for a long while. He was just not interested in working. He did get some benefits – the work that was done teaching him where his middle is was helpful, and we’ve never worked on that before. He learned to use a treadmill in a walker, and that was good, but I am not sure it translates well into daily living activities. I do think we will make another run at it in the future, but most likely not for at least a year. He needs to decide that he wants to go, and to cooperate.
It’s interesting that it seems like the skills we (“we” meaning the adults in his life) focus on, many times don’t improve, but other skills will just appear. For example, I think he’s using the potty 90% of the time now. I had given up on that, but he decided to do it. We’ve focused on balance and strengthening his torso and I do see some small improvements there, but he still is not able to walk independently.
However, his affected arm, his left one, has improved a great deal. He could not open that hand or stretch it out, and he has had occupational therapy for years to help him use that arm and hand. He was able to pick up six blocks at occupational therapy this week, and then move them across the middle of his body and put them down on purpose. It was a proud moment. Here’s a quick video of him using that arm and hand.
The best thing this week though was definitively the meeting I had today with the school district team -diagnosticians, therapists, teachers, and the principal met with me to review the plans for next year and go over the results of tests they’ve run. Caleb does not always present well, because his speech is hampered by cerebral palsy, and he’s also easily distracted. So I understand why there was some suspicion of developmental delay by the school. His score on overall functionality was unfair however – many parts of the test involved movement, or experiences he couldn’t relate to due to his disability. However, his IQ has tested out at perfectly average. He did very well on the riddles section of the test, and really impressed the tester with his wit and charm. He is still qualified for special ed because of his health impairment, but the shadow of developmental disability is now gone. Hooray!